Research programs, registries, and trials
DICE — the Global Registry for EDS and HSD
establishedresearch program
The Ehlers-Danlos Society's DICE Global Registry is the central patient-powered research registry — the infrastructure behind the misdiagnosis survey and the recruitment rail for studies like HEDGE. Indexed as first-party registry infrastructure.
| Subtype scope | all EDS types |
|---|---|
| Criteria era | international-2017 |
| Reviewed | 2026-09-16 |
Evidence
registryregistry report
registryregistry analysis
The registry is the sampling frame behind the published hEDS misdiagnosis analysis.