Genetics and biomarkers
HEDGE — the 1,000-participant hEDS genetic evaluation
emergingresearch programstrata converge
The Hypermobile Ehlers-Danlos Genetic Evaluation study is the largest dedicated hEDS genetics effort, run under The Ehlers-Danlos Society's research program. First publications were expected late 2025 into 2026; this index tracks it as the pivotal watch item for the subtype.
| Subtype scope | hEDS, HSD |
|---|---|
| Criteria era | international-2017 |
| Reviewed | 2026-09-16 |
| Reassess by | 2026-12-16 |
Evidence
registryregistry report
communitypatient-organization synthesis