Comorbidities and systemic features
Craniocervical instability and tethered cord — the contested frontier
contestedfindingstrata converge
Craniocervical instability and tethered-cord claims circulate strongly in community venues and some surgical case series, and CCI was among the most-endorsed diagnoses in the registry survey. Controlled evidence remains limited and surgical intervention carries real risk; this index marks the area contested rather than dismissing it.
| Subtype scope | hEDS, cEDS |
|---|---|
| Criteria era | international-2017 |
| Venues | r/ehlersdanlos, EDS and HSD Support Community (Inspire) |
| Reviewed | 2026-09-16 |
| Reassess by | 2026-12-16 |
Evidence
communitycross-venue pattern
registryregistry analysis
CCI among most-endorsed alternative diagnoses in the registry survey.